by George Taniwaki

In a May 2013 post, I described how to generate publicity for your living donor search by getting a local media outlet to provide news coverage. Not every patient will be able to get the editor or producer to do a news story.  If this is your situation, another way to get your message in front of people is to write a letter to the editor of the newspaper.

Letter-to-the-editor

The letter can be similar to the one described in a Nov 2011 post on sending letters to friends. It should contain the following information:

  1. Introduction of patient and matchmaker and why you are sending this letter
  2. Short medical history explaining why patient needs a kidney
  3. Explanation why matchmaker cannot be donor
  4. Request for potential donors to get a blood test (mention that you are especially hopeful of finding a type O donor if patient is type O)
  5. Contact info for the living donor transplant coordinator at the transplant hospital where surgery will take place (or the living donor advocate, depending on the process at the transplant hospital).

An example letter is reproduced below. It appeared in the Parkersburg (WV) News and Sentinel May 2013.

I am writing this to get the word out about living kidney donation, possible donors. I am writing this for my husband of 22 years. My husband is very special to me. He has been with me through thick and thin, hard times and happy times. He was a truck driver for 12 years.

He always said he felt like the king of the road when he was in his truck, he truly loved his job. He recently had to give up driving trucks because of a kidney disease. He had this problem for a long time, but his kidney problem steadily declined, making him have to give up driving trucks and be on dialysis. He goes to dialysis three times a week. He seems to be doing OK with the treatments; he tolerates it fine.

He is in need of a kidney transplant. We recently went to Ohio State University to be evaluated for transplantation listing on the national waiting list. His doctors said that he is a good candidate for transplant. The average waiting time for a deceased kidney donor is three to five years.

His best chance to get a kidney sooner is from a living donor. I would like to share some information about this. Kidney donors do not have to be immediate family. They can be anyone. For some people a transplant from a living donor may be their only option. Donors and recipients do not have to be from the same area. There are funds available for travel expenses and lodging. Donors return to a normal life with no fluid restrictions, diet restrictions or physical restrictions. Recipient’s insurance covers donors evaluation, surgery, follow-up care. Your health and life insurance won’t be affected if you donate to someone. For more info about becoming a living donor please contact a living donor coordinator (614) 293-6724 or 1-800-293-8965, option 4.

Let’s pray that someone out there might read this letter and decide to be a living donor. Thats why I wanted to put this letter out for all to read. I hope this will be able to reach many, many people. I need your help in this matter for anyone who has a loved one on dialysis and is in need of a kidney transplant. You might save someone’s life by being a living donor.

Christine Cullum

Parkersburg

For more ideas on finding a donor, see my Kidney patient guide.

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